Ok, things are still rough. Joshua has eaten about one days food all week. However we are at least getting used to it. He carries a bowl for the obvious reason and we just hold him when he is sick. NOW- to respond to all your wonderful suggestions and ideas. Yes, we have elevated his bed on one end, we are working with the doctors on different medicines to help and diets options. No, Ensure is not helpful, he can't keep it down. Everything tastes different now so he doesn't like much. We do have anti nausea medicines and anacides, and mirolax to help him run smooth. One problem we have is that he doesn't like the medicine and so it is a fight to get him to take them which makes everything harder. Yes we are using the best options for meds, disolvable. liquids make him sick and he can't get the pills down.
I want to make sure you know how wonderful he is in the middle of all this suffering. The kids all had an activity at church on Saturday and he was feeling bad. When I was getting the others ready to go with their ride( a wonderful friend that took them) he appeared dressed and ready and announced that he didn't want to miss it. He knew they would be making and eating cookies at the end and he could't have them but he didn't care, he knew it was important for him to go. He paid the price and was exhausted after and got sick last night. This morning he insisted on going to church too. I see him taking time to be kind to his brother and sisters even when he doesn't feel good. I know that I would be very grumpy if I was in his place but he is not.
As always, I am heartbroken for his suffering. It is hard to be so helpless to make things better for him. I would give anything to take this from him but I am learning to follow his example. We take one day at a time and try to get through it. We are so greatful for the many hands that lift us up. The rides for the kids, meals that show up unasked for, kinds words and phone calls. I hope that you will all be blessed now and that you will continue to pray for us. We are going prayer by prayer, blessing by blessing. Thank you.
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6 comments:
Bless his heart, I'm sure it is hard for him to miss out on anything when your siblings are going places. It sounds like you are learning a lot about caring for Josh. I'm sure that you are gaining these experience so that you and Josh can help others down the road.
We think about you every day. And pray for you many times a day. We love you.
So sorry to read that Josh is feeling so sick with this, but I am so proud of him for still being a good brother and son, and in putting up with all the stuff the doctors make him do. You go, Josh, you are truly being a good warrior in your battle. I'm so glad to be able to read about how well you are carrying it through. We'll keep praying for you and your family! hugs, robin
What a brave and valiant warrior! Your Florida friends wish you all the best! Keep brave, strong, and keep fighting! You are SO AWESOME!We love you!
Josh, we are praying for you that you can keep going even when you don't feel very strong. But you are being such a good boy--and it's okay to not feel strong and let other people help you feel better and hold you up sometimes. We love you so much. Hang in there!!!
we love you and josh...thanks for keeping us so well informed, it helps to know what to pray for. we hope the rest of the week gets a little easier.
I'm in tears thinking of the suffering Josh is going through, but so VERY proud of him. You are truly blessed, and You and Gordon have done a WONDERFUL job raising him. I'm counting down the days when I'll be there to give you all a hug.
Love & hugs.
Susan & Richard
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