Round One

Well we are off to a bumpy start. The good news first. Joshua's MRI was clear. That means that is showed no evidence of tumor left behind or new growth. (there was an area after the surgery where they didn't know what it was, left over tumor or swelling) Also we got the first round of chemo and he did not have a reaction to the infusion. (that is when they administer it, sometimes kids get really sick or have breathing problems) He is also eating well right now.

Well let me tell you the whole story. We went to the clinic on Thursday for our appointment. We had the MRI and then they told us the doctor was busy and we got lunch and then hung out and waited. Finally the doctor called us back and told us that they couldn't start chemo because they needed a 24 hour urine collection and forgot to tell us about it. She said well you live close come back tomorrow. So we went home and collected through the night and were back at clinic on Friday at 11am( when they told us to be there) They seemed unprepared for us and it took more than an hour for them to just get the sample to the lab for analysis(urine). Then we had to wait for the results to get started. That meant that we did not get chemo till 6 pm! Yes you heard right, they got us checked in a room and started at 6. That meant that we did not get released till 6pm today.(Saturday) Joshua had his first piano recital at 2pm today. His teacher gets a room at the Joslyn art Museum with a concert grand piano to play on and he missed it. I can not tell you how discouraged he was. He worked so hard on his piece and was so excited. We work so hard to try and keep his spirits up and he crashes very hard. I am very disappointed in our doctors and staff because it was preventable and not one but several errors caused this. We are hopeful that he will keep feeling good so that he can start to be up again. This group of drugs can have a delayed reaction so we are holding our breath till Tuesday. If he can get to then without going downhill he will do great with this part of the protocol. Also a word of caution now. We are in that part of the treatment where his white count can be low so no one can come around if they are sick. Well we are excited about the good news and want to focus on that. I hope all your lives are filled with your own good news and we will pray for it to continue. As always, thank you so much for your love and support and as Saturday draws to a close and Sunday starts --- Happy Mothers Day to all you wonderful Mothers, your example paves the way for our efforts.