Joshua is a hero! (not that you didn't already know that) I told him last Monday that after this last cycle of treatment they will schedule to remove his port. After that he will have to have regular IVs for MRIs ever couple of months. I just wanted to prepare him for the future but it is not for a while yet. Well he told me that night that when he got his blood draw this week he wanted to do it in his arm not his port. I was surprised but told him that was great. On Friday he came to the clinic with a smile on his face and fear in his heart. When they took him in the blood draw room he cried but he did not stop. He took a minute to calm himself and held out his arm. - You need to understand that the day he had his brain surgery they made him have an IV before they put him out and it blew. He was completely freaked out and 6 nurses held him down and put another one in. (they had to have a blood match before surgery in case they needed to give him blood) Since that day he panics at the thought of a needle in his arm and if more than 2 nurses are in his room he gets very frightened. For him to put his arm out voluntarily was truly an act of courage. He just doesn't stop amazing me. So many times he could be overwhelmed but he just catches his breath and goes on. I am so grateful to be his mom and so humbled too. His counts are good and he is feeling great. We have a small break and he goes into the hospital on the 13th for his last inpatient chemo.
We have been planning his big end of treatment party and I will be posting the information soon about that. Josh is very excited about this and is planning the menu. He wants grandma's purple salad (it is delicious) and is talking about punch. I have promised a fancy cake and lots of fun. Anyway, have a great week. Sorry this post took so long, homeschooling keeps me busy. All our love and prayers are for you and thanks for all your prayers for us.
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3 comments:
tell josh that jeffey is really proud of him, he likes to "see his blood" and tell everyone. wish we could be there for the party, maybe we will have to set up a web cam so we can all participate. love you tons josh! great job
My gosh. I can't even fathom what you're going through. I am just amazed at how strong you are and your family. I wish I had known so that I could have been there for you during all of this. I'm so sorry. Please remember that you're always in our prayers. We love you guys and miss you tons.
Ruth, This Kayola Skinner and I am so hoping Josh remembers me...Amy just told me about him and all you have been through...my ♥ seriously broke when I heard....HE IS ALSO MY HERO...Holy schmoly what he has been asked to endure is amazing!!!!! I fell in love with him in kindergarten and I would have carried him everywhere if I could have...I wish I could help him and all of you now...please give him my love and you all will be in my prayers and constant thoughts...
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