Monday, December 3, 2007

Here atoma, There atoma

First I want to say thank you to everyone who has prayed and fasted on Joshua's behalf! We have felt that love and promise and are so greatful for the support. Today we were busy, we started with the Orthopedic doctor and she wants him to wear braces. It can take several weeks to get them because they must be hand made in a prothetics lab and just the measuring can be a wait but when I called for the appointment they told me someone had just called to cancel and they had us come right over. They will still take two weeks to get but that is better than a month. We are now working with our primary care physician to try and navigate the maze of insurance and get everything covered as we move forward. Finally we talked to Dr. Treves tonight. He says that he has been looking at the tumor and even went over to the hospital to view the original films. He has presented it to 5 doctors and they have compiled a list of 4 top picks for what this is. It could be a Shwannoma, a Ependymoma, a heymartoma(I couldn't get that spelled right), or a Meningioma. It could also be neurophytonoma(again with the spelling) or a Oligodendroglioma. Dr. Treves is on board with our trip to Texas and has ordered another MRI before we go. This one will be with contrast dye and very important. He says that how much dye the tumor takes on will help make the decision on how soon it has to come out and which atoma it really is. He said that he knew they would want it so lets get it done. We are also waiting on the bladder study on the 11th to decide about the spinal surgery. Sooooooo by the time we get home from Texas we are hoping to have a plan. If the tumor needs to wait we will try to do the spinal surgery over christmas. Other wise the tumor will come first but we need to know which atoma it is to decide when. Ok, to recap we have an MRI with contrast this week, a bladder study on the 11th, and head to Texas on the 12th for an appointment on the 13th. We will be home that night and try to get a post in right away. I would like to tell you how I feel about all this but I am numb. The maze of doctors, insurance rules, and words I can't even pronounce is overwelming. We are excited that in 10 days we might see some light at the end of this tunnel. But we are most excited about you. Your support and love helps everyday.........Thank you.................

6 comments:

Anonymous said...

Ruth

It is Barb, from the health room at Wheeler. I have been reading your blog and appreciate knowing what exactly is going on with Josh. He is such a great kid - I love seeing him smile when he walks by the office. I pray you get some answers soon - cannot imagine how scary to know something is in there but not know what it is. Please let us know if we can help you in any way.
See you soon
Barb Douglas

Kyle Is Neat said...

Hey Ruth, this is Kyle...

I just heard. I am so sorry for your son. Our prayers and faith are with you.

Anonymous said...

Heya Ruth! So sorry for all you are going thru, but you are a strong lady. Amazing to see the Lord's hand in it as it plays out. Just keep remembering HE knows how it is all going to turn out. Aren't you SO glad to have married into the awesome Jones clan!? The support from them all is astounding. We, too, have been praying for you and Josh; AND his doctors.
Try to slow down and find peace as much as you can.
love and hugs, Robin Reeder

Ruth Tait said...

Ruth & Gordon,
What a great idea to post news about your family so you don't have to repeat things 5 million times. We just wanted you to know that you have been in our prayers since the day we found out about little Joshua from Marie Despain. We hope you get encouraging news next week. There are many people that love you and would like to give you a virtual hug. We hope you can "feel" it. :-)
Love,
Alan & Ruth Tait

susan said...

Well being a geek, I had to google the atoma types. The spellings are Schwannoma, Ependymoma, Hamartoma, Meningioma, Neurocytoma, & Oligodendroglioma. Basicly, the differences seems to be the type of cells. They are all treated the same. So, just need to know when he will be treated. Hopefully soon. Our prayers are with you all. Love and Hugs.

Susan & Richard

gerie said...

Love and prayers continue to surround all of you. Thank you for taking the time to update us on Josh and all that's happening. Big hug. Gerie