Sunday, January 11, 2009
The Bomb and the Fallout
Well, Joshua has been doing so well this cycle but I am not surprised by this news. When he was in the hospital last time there is one chemo that he takes by mouth but he kept throwing it up. The nurse finally came in and said the doctor told her that it was a maintance dose and they were just going to skip it. Well I mentioned it to the oncologist we saw in the clinic the next week and he said that it was important and that he should have had it but it was too late and we would just worry about taking next cycle. Well when we went to the clinic this Friday they dropped a bomb. Doctor Wolff, the head of the department found out about all this and freaked out. He said that that chemo was very important and we have to get it down. Even though we are 3 weeks out he still wants Joshua to take it. This is troubling on several levels. One he still has the problem of taking it, he gets very upset about taking pills now. Also it will give him nausea for a day or two (bummer) but the biggest thing is that this is the drug that kills his counts and makes him so weak and tired. AND the count drop will happen 2-3 weeks out so this will affect his next cycle, it may be delayed if his counts do not rebound fast enough. We are going to the clinic in the morning to take this chemo. I am giving him anti nausea to try and help and I am insisting that the counselor that has begun working with him be present to help. I will say that I think that this has all been a blessing for him from Heavenly Father. Everybody at our house has had a cold and cough and he had it too. If he had gotten that chemo he could have gotten very sick and been in the hospital so I think that this delay was heaven sent to protect him. I just hope tomorrow goes well and he doesn't get too weak from this. We will have to see. Meantime we appreciate your prayers and hope that all is well with you. I will post later in the week. To be honest, the longer it takes for me to get another post in the harder of a time he is having, I really have to focus on him when he is weak.
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1 comment:
It must be so overwhelming and confusing to have doctors saying different things.
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