New News?

Ok, they say no new news is good news but I am not sure about that. We met the Neuro-surgeon today and don't have much new to say. He is not sure what the mass in his brain is. He said it could be several kinds of tumors or even a malformation of his brain (that is a small possibility). He wants to meet with a group of doctors and have everyone review it for their opinions. He said that will take a week to 10 days and he will call us. He feels that because Josh doesn't have symtoms that we can wait and gather more information to make our decision with. The surgery will be risky, there is the possiblity of facial paralasys, deafness, and motor or balance loss. The tumor is in the left side of his cerabellum but up against his brain stem which is on the inside so they will have to pass through the nerves to reach it.
Before you say it, the fact that he is checking with other doctors is good, and I am glad he doesn't have symtoms. That doesn't make me feel any better. I want someone to say, "oh, I have seen this...This will fix it" not "boy is this unusual, I will have to see". I am not good at waiting and this is the worse. Every time he bumps into a table or the wall, everytime he doesn't feel good I wonder. I don't want to wait till this thing presses on his brain stem and he can't breath or it squeezes a nerve and he goes deaf to figure it out. This is my baby and I want him whole and well.
Now that I have the whining out of the way, let me continue. The spinal surgery is a little more routine. While it is still delicate he does this one at least once a month. We are going to try to get this out of the way over christmas. We need a bladder study done first and we have to see if it can all be scheduled. But if we can do it over the holidays that would be the best because Gordon will be home. Also, if we get more information about the tumor and need to proceed quickly this will not be hanging over us complicating things. He will still need physical therapy and probably braces to retrain his muscles but at least we will be moving forward and by his birthday he will be walking normally. We will know more about the definate date in about a week (sound familiar).
Well, I have not said much you didn't already know but you do know as much as I do........Thanks for all the prayers and offers of help. Keep praying and we will wait for news. The one thing I know for sure is that we are blessed to have all of you on our side and helping out. Thanks for all you do........Ruth