Well there is lots to say tonight. Let me focus on the medical news and then we will talk about the rest. We went for a test today on balance and hearing. The good news...He can hear fine. The bad news....He has 33%vestibular weakness on the left. He also has balance dysfunction under most sensory conditions. Who wants to hear that in English? That means he has a tumor. Actually what it means is that he does have symptoms from his tumor. What is making this so hard is that he is so young he is actually adjusting to all these problems and we are not seeing them. He has significant balance loss and eyes problems and while his hearing is good the hearing nerve is affected.
What affect this will have on our treatment is unsure. In the mean time we decided to start looking for answers. We asked Dr. Treves where to look and then did our research and ended up at Texas Childrens Hospital. We have sent the films and all the doctors reports there and we will hear soon what they think. If they know what this tumor is we will have to go to Texas. I can't believe I just said that. Every thing is so unreal now. You see movies or hear stories of families that go through this and when it is happening to you it is like you are watching the movie again. I feel like I am in the eye of a hurricane. It is calm and quiet now but raging all around us. Please pray that the doctors can find the right answers. Pray that we will know what to do and where to go. We need to be led so that when we enter the storm we will not be swept away. I hear what the doctors have said, I wait to hear what they will say, but mostly I hear what they do not say. Today we got more information that may be speaking to us as well. We appreciate your prayers and thoughts and we wait to hear good news.
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5 comments:
Ruth and Gordon
We wish we could be closer to you so we could wrap our arms around you.
We will continue to keep Joshua and your family in our prayers.
Adam says a prayer for him every night.
Please call on us if you need anything. Arizona is a ways away but even if you need to talk to someone we are here for you.
We love you guys
Jim,Wendy and family..
I'm still in shook. I went online to find the Hospital and read up on brain tumors. Really made it sink in. I now know where the cerebellum is located and what it does. My prayers are with you all and extra ones for Josh. I just wish I was there to give you a hug. Love to you all.
Susan & Richard
Ruth & Gordon,
Please know our thoughts and prayers are with you as you struggle to make right decisions regarding Josh's treatment. I know He will strengthen you and bring peace to your minds as you "walk by faith, not by sight." We will be fasting for your family on Sunday.
Our Love,
Dave & Ginny
((HUGS)) Ruth and family!
I'm so sorry to hear about little Joshua. Our prayers are with you and your family as well as the Dr's at this time and hope that you will find the strength you need.
We love you!
Lisa, Kirk, Lauren, Jack, Erik and Ian
Ruth & Gordon
When you get more info ask the doc about St. Jude's Childrens Research Hospital in Memphis. Better yet e-mail/or call St. Jude's. They "have science on the fast track" (quote from Marlo Thomas). They do great work & no one is ever turned away. I have faith God will lead you in the right direction.
Love & Prayers.
Fran & Lee Grohoski
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